NEUROFIBROMATOSIS AWARENESS MONTH
The month of May is Neurofibromatosis (NF) Awareness Month. NF is a set of three complex genetic conditions that cause tumours to form on nerve cells throughout the body, including the spine and brain. NF affects more than 10,000 people in Australia.
The aim for the month is to improve understanding of the signs and symptoms of NF, share the stories of real people affected by the condition, and to educate Australians on the diagnosis and treatment. The hope is to bring NF out of the shadows this May!
Emily Kirkpatrick in Year 8 was diagnosed with NF when she was just a baby.
She has been living with the condition all her life.
This is Emily’s Story
At our last Year 8 meeting we gathered in the College Hall to learn about Emily’s journey, and to take some time to hear about how NF affects different people. Emily is such a brave young lady who enjoys telling her story and promoting awareness of NF. She got up in front of the year group and answered some questions about NF.
What are some of your interests and what is something you are looking forward to?
I love painting and drawing and I am looking forward to my new bike from freedom wheels which has supports to help me ride it. I also love speaking and talking to people about being different, and how it is ok to be different.
How do you live with NF?
I have epilepsy, delayed learning and I get shock pains in my leg.
Is there a cure?
No there isn't yet, but we are hoping to raise money to find one!
Why is it important to you that people know about it?
Because people can misjudge, and think that you cannot do some things. Symptoms can be misjudged, it's in our community and closer than we think.
What can people do to help?
Donate to the cause, raise awareness, learn more by checking out the website and reading the other stories. Participate in fundraisers like the ‘Undie Run’ around valentine’s day.
If you would like to find out more about NF, to donate or to purchase some merchandise then please visit the Children’s Tumour Fundraiser Website.
Congratulations to Ishaan Jamnadas who has received a Leader of Pastoral Care Award.
ACTING YEAR 8 LEADER OF PASTORAL CARE